An Introduction

Hi, Hey, Hello !

My name is Rachael and I am (almost) Twenty-five years old. I am currently in the last leg of my first year of ministry school at Celebration College in Jacksonville, Fl. I'm in the Children's track, and it is AWESOME.

I also have a genetic disorder called Neurofibromatosis, this is a disorder that causes tumors to grow on nerve endings throughout the body.  I have had "NF" as they call it, since I was born.  For me, the tumors are all up and down my right leg.  I have had surgeries to remove the tumors, but as MY luck would have it, they grew back with a vengeance.

Unfortunately for me, the older I get the worse my leg gets. And by worse, I mean my leg swells uncontrollably.  Sometimes it swells to the point that I can't even walk.  It is really scary because I don't know the reason why it swells so bad.  Most of the time it's just because I've been walking to much or I don't prop it up as much as I should.

This brings me to the entire reason I've made this blog. I'm about to go into a very scary and exciting season of my life.

With a lot of thought and research for almost a year now, I have made the decision to have my right leg from below the knee amputated.

Boom. Bomb dropped.

Most of you who read this, will know the struggle I go through every single day with NF. To be truthful this wasn't even a hard decision for me to consider or even make. I'm so at peace with it because I know this is what is best for me and my quality of life.

I have two paths to choose from,

  • One ... keep my leg, be miserable and insecure when I look down because of how ugly it is.  Be miserable in general because of the pain I get from when it randomly decides to swell up. I can choose to keep my leg and be unhappy for the rest of my life because I have a giant ugly mass on my leg.


  • Two ...NO pain!  Did I say NO Pain! Although it will be fake, my "leg" will be beautiful! I can truly feel like myself and not have to worry whether or not I'm going to have to cut my pants off or make a wasteful trip to the ER. My legs will be even and I will have reduced back pain from me being off balance.  I can buy one pair of the same size shoes.  And speaking of shoes, I will own a pair of Louboutin's and i will look GREAT in them.


 This isnt some rash decision and I know what I'm getting myself into. I'm just going to need so much love and support and prayers in this next season. And I'm hoping that that is what I will get from you.

Until next time babes,

Rachael

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5 comments

  1. You are such an incredible young women! I know God has you in His hands and will use you to His purpose to touch many lives through your journey. Prayers for your faith and hope to remain strong through it all!

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  2. This is amazing, God is working in your and through you. I love to see the Lord in action.

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  3. Wow! You're stenghth is very inspiring young lady and I can't wait to see you in your Louboutins!!! I will be following you the entire time. I love you and keep rockin' on with your sparkly self!

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  4. You are so wise beyond your years! I can't wait to read about yoy growing into your new journey. I don't even really know you and I love you. You are a beautiful person inside and out.

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  5. You are so wise beyond your years! I can't wait to read about yoy growing into your new journey. I don't even really know you and I love you. You are a beautiful person inside and out.

    ReplyDelete